If you are

  • a TNPO2 patient

  • take care of TNPO2 patient

  • a family member or loved one of a TNPO2 patient

Join our FB community to

  • access research and news

  • share information

  • give and receive support

from families facing this challenging journey together.

Started by the mom of proband #1 from Goodman2021 paper, our patient community is growing as more and more patients get diagnosed. We hope to share information and resources to help all of us.